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# RTS Support Group: Helping people with RTS and raising awareness of it

## Sitemaps
[XML Sitemap](https://www.rtsuk.org.uk/sitemap_index.xml): Includes all crawlable and indexable pages.

## Pages
- [Conference Booking Confirmation](https://www.rtsuk.org.uk/booking-confirmation/): Thank you for your interest in the RTS Conference.Your payment was successfully completed.
- [Conference Booking Form](https://www.rtsuk.org.uk/conference-booking/): Tickets remaining:
- [Conferences](https://www.rtsuk.org.uk/conferences/)
- [Conference 2024: Review](https://www.rtsuk.org.uk/conferences/conference-2024-review/): RTS Family June 2024 Conference Review
- [Conference 2022: Presentations and more](https://www.rtsuk.org.uk/conferences/conference-2022-presentations/): RTS Family June 2022 Conference: Presentations and more ...
- [Three Peaks Challenge](https://www.rtsuk.org.uk/three-peaks-challenge/): Congratulations to the amazing team who completed the Challenge!
- [Connecting families](https://www.rtsuk.org.uk/connecting-families/): The RTS Support Group started off with a small number of families being contacted by Barbara Baron who kept in touch by phone and letter.
- [Conference Booking Details](https://www.rtsuk.org.uk/booking-details/): RTS Family Conference 2026
- [My account](https://www.rtsuk.org.uk/my-account/)
- [Supporting](https://www.rtsuk.org.uk/supporting/): Alongside these three stages, Courtney will be working on other tasks such as a conducting a review of the research literature to select the most appropriate tasks, analysing existing datasets to inform her work, updating RTS videos and parent behaviour guides on the Further Inform Neurodevelopmental Disorders website (www.findresources.co.uk), and contributing to summaries for RTS clinical guidelines once they have been published.
- [Info Bank](https://www.rtsuk.org.uk/info-bank/): Much of the information available about RTS is in the form of papers and articles written by medical professionals, and as such is impersonal, and uses medical terms and language that are not easily understood by everybody.
- [Jack’s story](https://www.rtsuk.org.uk/jacks-story/): Even though all of theseJack was very poorly from birth with lots of different problems (breathing difficulties, poor feeding, vomiting after every feed, very slow growth etc). I spent the first month in hospital with him, followed by his first year full of milestone delays and hospital admissions. We were in love with Jack but it wasn’t a year we would ever want to repeat.
- [Spartan’s Story](https://www.rtsuk.org.uk/spartans-story/): Our son Lucas was born on February 3, 2013 in Bangkok, Thailand and while that day was filled with love, joyfulness and the excitement that every family enjoys, it was the start of our incredible journey with our Little Spartan!
- [Amba’s Story](https://www.rtsuk.org.uk/ambas-story/): I am 20 years old and I was diagnosed with RTS when I was 15.
- [Aara’s Story](https://www.rtsuk.org.uk/aaras-story/): Aara was born on 30th October 2016, and was diagnosed with RTS on 24th January 2018, and how that changed our life for the better as a family.
- [Volunteer expenses and purchases](https://www.rtsuk.org.uk/volunteer-expenses/): Policy & Procedures
- [Contact](https://www.rtsuk.org.uk/contact/): Email us, and your query will be answered by one of the support group team.Fill in the form to enquire or register to receive information about future events, news and updates.
- [Resources](https://www.rtsuk.org.uk/resources/): Contact, the charity for families with disabled children, supporting families with the best possible guidance and information. https://www.contact.org.uk
- [Web privacy](https://www.rtsuk.org.uk/privacy/): This website has software (Google, Metrica and Microsoft Clarity) so we can check it’s working as it should and help us improve it.
- [Get Involved](https://www.rtsuk.org.uk/get-involved/): The RTS Support Group is able to provide support and information to its members through the voluntary work of the committee and help and assistance offered by a generous network of helpers.
- [About](https://www.rtsuk.org.uk/about/): The RTS Support Group is both a registered charity and company limited by guarantee. We run on a not-for-profit basis by a volunteer management committee of Trustees.
- [Home](https://www.rtsuk.org.uk/): Rubinstein-Taybi Syndrome (RTS) is an extremely rare genetic condition, occurring in around one case per 125,000 live births.

## Policies
- [Confidentiality Policy](https://www.rtsuk.org.uk/policy/confidentiality-policy/)
- [Volunteer Policy](https://www.rtsuk.org.uk/policy/volunteer-policy/)
- [Reimbursement of Expenses & Purchases Policy & Procedures](https://www.rtsuk.org.uk/policy/reimbursement-of-expenses-purchases-policy-procedures/)
- [Volunteer Conflict of interest Policy](https://www.rtsuk.org.uk/policy/volunteer-conflict-of-interest-policy/)
- [Safeguarding Children & Vulnerable Adults](https://www.rtsuk.org.uk/policy/safeguarding-children-vulnerable-adults/)
- [Safeguarding Adults at Risk](https://www.rtsuk.org.uk/policy/safeguarding-adults-at-risk/)
- [Risk Policy](https://www.rtsuk.org.uk/policy/risk-policy/)
- [Investment Policy](https://www.rtsuk.org.uk/policy/investment-policy/)
- [Health & Safety Policy](https://www.rtsuk.org.uk/policy/health-safety-policy/)
- [Equality Diversity & Inclusion Policy](https://www.rtsuk.org.uk/policy/equality-diversity-inclusion-policy/)
- [Complaints Policy and Procedure](https://www.rtsuk.org.uk/policy/complaints-policy-and-procedure/)
- [Fundraising Policy](https://www.rtsuk.org.uk/policy/fundraising-policy/): bbb